{"id":371284,"date":"2018-06-04T11:03:31","date_gmt":"2018-06-04T09:03:31","guid":{"rendered":"http:\/\/hudo.com\/si\/?p=371284"},"modified":"2018-06-04T11:03:31","modified_gmt":"2018-06-04T09:03:31","slug":"po-13-letih-se-je-ukc-ljubljana-poravnal-z-mamo-umrlega-decka","status":"publish","type":"post","link":"https:\/\/hudo.com\/si\/aktualno\/po-13-letih-se-je-ukc-ljubljana-poravnal-z-mamo-umrlega-decka\/","title":{"rendered":"Po 13 letih se je UKC Ljubljana poravnal z mamo umrlega de\u010dka"},"content":{"rendered":"
\n

Konec februarja je ljubljanska okro\u017ena sodnica Doris Jarc kon\u010dala glavno obravnavo v ponovljenem sojenju in napovedala pisno sodbo. A \u0161e pred izdajo pisne sodbe sta se UKC Ljubljana in njihova zavarovalnica Adriatic Slovenica poravnala z dru\u017eino umrlega de\u010dka. S tem je UKC Ljubljana posredno priznal odgovornost za tragi\u010dni dogodek, de\u010dkova dru\u017eina pa je po letih trpljenja dobila zado\u0161\u010denje, pi\u0161e Delo.<\/p>\n

Triletnika so septembra 2003 hospitalizirali na pediatri\u010dno kliniko UKC Ljubljana zaradi oku\u017ebe z Epstein-Barrovim virusom (virus herpesa). Mesec dni kasneje je de\u010dek umrl zaradi posledic te oku\u017ebe, povezane z dedno boleznijo XLP, napako v imunskem sistemu, zaradi katere mal\u010dek na virus ni bil odporen. Njegovo dedno bolezen XLP so odkrili \u0161ele po njegovi smrti, \u010deprav je otrokova mama \u017ee ob nose\u010dnosti zdravnike opozarjala, da sta njena brata umrla prav zaradi te dedne bolezni, ko sta bila stara eno oz. tri leta.<\/p>\n

Dru\u017eina umrlega de\u010dka je zato zagovarjala stali\u0161\u010de, da bi bil de\u010dek \u0161e \u017eiv, \u010de bi se zdravniki odlo\u010dili za genetsko preiskavo, s katero bi diagnosticirali njegovo dedno bolezen, in mu presadili kostni mozeg. Zdravniki so namre\u010d \u0161ele po de\u010dkovi smrti opravili genetsko diagnozo, ki je potrdila motnjo imunskega sistema. Zanjo je zna\u010dilen napa\u010den odziv organizma na infekcijo z Epstein-Barrovim virusom, ki povzro\u010da infekcijsko mononukleozo.<\/p>\n

V primeru, da bi pravo\u010dasno potrdili obolenje, bi bilo mo\u017eno zdravljenje s transplantacijo kostnega mozga. Transplantacijo sicer so izvedli, a \u0161ele po tem, ko je de\u010dek \u017ee zbolel za Epstein-Barrovim virusom in tri dni pozneje umrl, povzema Delo.<\/p>\n

Dru\u017eina umrlega de\u010dka je ves \u010das vztrajala, da bi bil de\u010dek \u0161e \u017eiv, \u010de bi v UKC Ljubljana pravo\u010dasno opravili preiskave, s katerimi bi potrdili prisotnost dedne bolezni in jo posledi\u010dno primerno zdravili.<\/p>\n

Izvedenska komisija ljubljanske medicinske fakultete v ravnanju zdravnikov UKC Ljubljana ni odkrila malomarnosti in zdravljenje ocenila kot primerno in skladno s takratnim znanjem ter priporo\u010dili v literaturi. Prav na podlagi tega mnenja je sodnica ljubljanskega okrajnega sodi\u0161\u010da v prvem sojenju leta 2014 tudi zavrnila to\u017ebeni zahtevek de\u010dkove dru\u017eine proti UKC Ljubljana in zavarovalnici Adriatic Slovenica. Opustitev direktne diagnostike naj namre\u010d ne bi vplivala na prepoznavanje bolezni in zdravljenje.<\/p>\n

Vi\u0161je sodi\u0161\u010de pa je sodbo razveljavilo in vrnilo v novo odlo\u010danje. Menili so, da izvedenci niso zadostno pojasnili razlogov, zakaj pri de\u010dku niso pravo\u010dasno opravili genetske diagnostike in presaditve. Sodnico so napotili k zasli\u0161anju izvedencev in k anga\u017eiranju novega izvedenca, v primeru, da odgovori dosedanjih izvedencev ne bi bili zadovoljivi.<\/p>\n

V ponovljenem sojenju je tako sodi\u0161\u010de anga\u017eiralo novega izvedenca z univerzitetne otro\u0161ke klinike v Leipzigu, ki po poro\u010danju Dela velja za enega vodilnih evropskih strokovnjakov za to podro\u010dje. Po njegovem mnenju bi leta 2003 pravo\u010dasna genetska preiskava gotovo izbolj\u0161ala de\u010dkovo prognozo. Ta je med drugim tudi navedel, da mu ni znano, kateri zasebni certificirani laboratorij v Sloveniji je tedaj sploh uradno omogo\u010dal genetiko za to bolezen, \u0161e navaja Delo.<\/p>\n

V bolni\u0161nici so za Delo \u0161e pojasnili, da so marca letos bolnikom oz. njihovim svojcem v dveh primerih skupno izpla\u010dali okoli 30.000 evrov od\u0161kodnin. Aprila so sklenili \u0161e dve poravnavi, a ve\u010d niso \u017eeleli razkriti.<\/p>\n<\/div>\n","protected":false},"excerpt":{"rendered":"

Univerzitetni klini\u010dni center (UKC) Ljubljana se je po 13 letih pravdanja poravnal z dru\u017eino triletnega de\u010dka, ki je v bolni\u0161nici umrl zaradi posledic redke dedne bolezni, poro\u010da \u010dasnik Delo. Kak\u0161na je vsebina poravnave v UKC Ljubljana za Delo niso \u017eeleli razkriti, vse tri stranke so se namre\u010d zavezale, da tega ne bodo razkrile.<\/p>\n","protected":false},"author":5,"featured_media":34831,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1179],"tags":[11289,1595,4814,4640],"source":[4511],"supertag":[],"acf":[],"yoast_head":"\nPo 13 letih se je UKC Ljubljana poravnal z mamo umrlega de\u010dka - Hudo Slovenija<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/hudo.com\/si\/aktualno\/po-13-letih-se-je-ukc-ljubljana-poravnal-z-mamo-umrlega-decka\/\" \/>\n<meta property=\"og:locale\" content=\"sl_SI\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Po 13 letih se je UKC Ljubljana poravnal z mamo umrlega de\u010dka - Hudo Slovenija\" \/>\n<meta property=\"og:description\" content=\"Univerzitetni klini\u010dni center (UKC) Ljubljana se je po 13 letih pravdanja poravnal z dru\u017eino triletnega de\u010dka, ki je v bolni\u0161nici umrl zaradi posledic redke dedne bolezni, poro\u010da \u010dasnik Delo. 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