{"id":407298,"date":"2019-09-28T12:54:52","date_gmt":"2019-09-28T10:54:52","guid":{"rendered":"http:\/\/hudo.com\/si\/?p=407298"},"modified":"2019-09-28T12:55:25","modified_gmt":"2019-09-28T10:55:25","slug":"za-zdravilo-kakrsno-potrebuje-kris-v-nemciji-placala-zdravstvena-blagajna","status":"publish","type":"post","link":"https:\/\/hudo.com\/si\/aktualno\/za-zdravilo-kakrsno-potrebuje-kris-v-nemciji-placala-zdravstvena-blagajna\/","title":{"rendered":"Za zdravilo, kakr\u0161no potrebuje Kris, v Nem\u010diji pla\u010dala zdravstvena blagajna"},"content":{"rendered":"
\n

Usoda enoletnega de\u010dka iz Ludwigsburga na jugozahodu Nem\u010dije, ki trpi za eno najhuj\u0161ih redkih dednih mi\u0161i\u010dno-\u017eilnih bolezni, je pretresla Nem\u010dijo. Star\u0161a Marina in Oleg sta se ve\u010d mesecev bala za \u017eivljenje svojega sina. Njegovo zdravstveno stanje je bilo \u010dedalje slab\u0161e. Mi\u0161ice so se kr\u010dile, namesto da bi rasle. Vse te\u017eje se je tudi premikal in dihal.<\/p>\n

Edino upanje je bilo izjemno drago zdravilo zolgensma, ki po navedbah nem\u0161kega medija RTL stane 2,1 milijona evrov. Star\u0161i so se odlo\u010dili za zbiranje dobrodelnih prispevkov, \u010demur so se pridru\u017eili \u0161tevilni znani nem\u0161ki igralci, glasbeniki, \u0161portniki in druge znane osebnosti.<\/p>\n

Zbrali so 1,3 milijona evrov, a so nato v za\u010detku septembra nem\u0161ke zdravstvene oblasti sporo\u010dile, da bodo zdravljenje pla\u010dali iz zdravstvene blagajne. Organizacija, ki je zbirala denar, je sporo\u010dila, da bodo zbrana sredstva porabili za druge projekte.<\/p>\n

De\u010dek je zdravilo po poro\u010danju nem\u0161kih lokalnih medijev prejel v torek v bolni\u0161nici v Heidelbergu in je zdaj \u017ee v doma\u010di oskrbi. “Danes lahko Michael praznuje nov rojstni dan. Z va\u0161o podporo, va\u0161o mo\u010djo, va\u0161imi molitvami in vero v \u010dude\u017e nam je skupaj uspelo nemogo\u010de. Na za\u010detku nas je bilo malo. Z vami nas je iz dneva v dan ve\u010d. Michaelu ste podarili mi\u0161ice,” so star\u0161i zapisali na Facebooku.<\/p>\n

Zdravilo zolgensma potrebuje tudi 19-mese\u010dni de\u010dek iz Kopra Kris, ki se je prav tako rodil s spinalno mi\u0161i\u010dno atrofijo. Za zdravljenje v ZDA dru\u017eina potrebuje 2,3 milijona evrov, v manj kot treh dneh pa so posamezniki, dru\u0161tva, podjetja in druge organizacije prispevale \u017ee ve\u010d kot 1,5 milijona evrov.<\/p>\n

Dobrodelno zbiranje sredstev za Krisovo zdravljene v ZDA je sicer odprlo vpra\u0161anje, zakaj stro\u0161kov zdravljenja ne krije obvezno zdravstveno zavarovanje. Na Zavodu za zdravstveno zavarovanje Slovenije (ZZZS) so za STA pojasnili, da star\u0161i pri ZZZS niso vlo\u017eili nobene vloge za zdravljenje v tujini ali za nabavo zdravila v tujini, verjetno zato, ker jim tega niso predlagali le\u010de\u010di slovenski zdravniki.<\/p>\n

Za zdravljenje pri nas je doslej prejemal zdravilo spinraza. Kot so za STA pojasnili v ZZZS, je bilo to zdravilo pri Krisu “zelo uspe\u0161no, saj ni le zavrlo bolezni, temve\u010d je pri\u0161lo do bistvenega izbolj\u0161anja”.<\/p>\n<\/div>\n","protected":false},"excerpt":{"rendered":"

Zgodba o de\u010dku, ki trpi za spinalno mi\u0161i\u010dno atrofijo, kot slovenski de\u010dek Kris, je v zadnjem \u010dasu pretresla in zdru\u017eila tudi Nem\u010dijo. Tam je stro\u0161ke ve\u010d milijonov vrednega zdravljenja prevzela zdravstvena blagajna. De\u010dek Michael je tako ta teden prejel zdravilo zolgensma in je \u017ee v doma\u010di oskrbi, poro\u010dajo nem\u0161ki mediji.<\/p>\n","protected":false},"author":5,"featured_media":407285,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1179],"tags":[14797,3628,1652,1595,5288],"source":[4511],"supertag":[],"acf":[],"yoast_head":"\nZa zdravilo, kakr\u0161no potrebuje Kris, v Nem\u010diji pla\u010dala zdravstvena blagajna - Hudo Slovenija<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/hudo.com\/si\/aktualno\/za-zdravilo-kakrsno-potrebuje-kris-v-nemciji-placala-zdravstvena-blagajna\/\" \/>\n<meta property=\"og:locale\" content=\"sl_SI\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Za zdravilo, kakr\u0161no potrebuje Kris, v Nem\u010diji pla\u010dala zdravstvena blagajna - Hudo Slovenija\" \/>\n<meta property=\"og:description\" content=\"Zgodba o de\u010dku, ki trpi za spinalno mi\u0161i\u010dno atrofijo, kot slovenski de\u010dek Kris, je v zadnjem \u010dasu pretresla in zdru\u017eila tudi Nem\u010dijo. Tam je stro\u0161ke ve\u010d milijonov vrednega zdravljenja prevzela zdravstvena blagajna. De\u010dek Michael je tako ta teden prejel zdravilo zolgensma in je \u017ee v doma\u010di oskrbi, poro\u010dajo nem\u0161ki mediji.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/hudo.com\/si\/aktualno\/za-zdravilo-kakrsno-potrebuje-kris-v-nemciji-placala-zdravstvena-blagajna\/\" \/>\n<meta property=\"og:site_name\" content=\"Hudo Slovenija\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/hudo.si\" \/>\n<meta property=\"article:published_time\" content=\"2019-09-28T10:54:52+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2019-09-28T10:55:25+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/hudo.com\/si\/wp-content\/uploads\/sites\/2\/2019\/09\/kris.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"537\" \/>\n\t<meta property=\"og:image:height\" content=\"546\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"A. G., STA\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@hudo_si\" \/>\n<meta name=\"twitter:site\" content=\"@hudo_si\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"A. G., STA\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minuti\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/hudo.com\/si\/aktualno\/za-zdravilo-kakrsno-potrebuje-kris-v-nemciji-placala-zdravstvena-blagajna\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/hudo.com\/si\/aktualno\/za-zdravilo-kakrsno-potrebuje-kris-v-nemciji-placala-zdravstvena-blagajna\/\"},\"author\":{\"name\":\"A. G., STA\",\"@id\":\"https:\/\/hudo.com\/si\/#\/schema\/person\/2391667a63ea075ba94f2f2dc6b77537\"},\"headline\":\"Za zdravilo, kakr\u0161no potrebuje Kris, v Nem\u010diji pla\u010dala zdravstvena blagajna\",\"datePublished\":\"2019-09-28T10:54:52+00:00\",\"dateModified\":\"2019-09-28T10:55:25+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/hudo.com\/si\/aktualno\/za-zdravilo-kakrsno-potrebuje-kris-v-nemciji-placala-zdravstvena-blagajna\/\"},\"wordCount\":403,\"publisher\":{\"@id\":\"https:\/\/hudo.com\/si\/#organization\"},\"keywords\":[\"Kris\",\"nem\u010dija\",\"otroci\",\"Slovenija\",\"zdravilo\"],\"articleSection\":[\"Aktualno\"],\"inLanguage\":\"sl-SI\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/hudo.com\/si\/aktualno\/za-zdravilo-kakrsno-potrebuje-kris-v-nemciji-placala-zdravstvena-blagajna\/\",\"url\":\"https:\/\/hudo.com\/si\/aktualno\/za-zdravilo-kakrsno-potrebuje-kris-v-nemciji-placala-zdravstvena-blagajna\/\",\"name\":\"Za zdravilo, kakr\u0161no potrebuje Kris, v Nem\u010diji pla\u010dala zdravstvena blagajna - Hudo Slovenija\",\"isPartOf\":{\"@id\":\"https:\/\/hudo.com\/si\/#website\"},\"datePublished\":\"2019-09-28T10:54:52+00:00\",\"dateModified\":\"2019-09-28T10:55:25+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/hudo.com\/si\/aktualno\/za-zdravilo-kakrsno-potrebuje-kris-v-nemciji-placala-zdravstvena-blagajna\/#breadcrumb\"},\"inLanguage\":\"sl-SI\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/hudo.com\/si\/aktualno\/za-zdravilo-kakrsno-potrebuje-kris-v-nemciji-placala-zdravstvena-blagajna\/\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/hudo.com\/si\/aktualno\/za-zdravilo-kakrsno-potrebuje-kris-v-nemciji-placala-zdravstvena-blagajna\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/hudo.com\/si\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Za zdravilo, kakr\u0161no potrebuje Kris, v Nem\u010diji pla\u010dala zdravstvena blagajna\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/hudo.com\/si\/#website\",\"url\":\"https:\/\/hudo.com\/si\/\",\"name\":\"Hudo Slovenija\",\"description\":\"Vse novice iz Slovenije in sveta\",\"publisher\":{\"@id\":\"https:\/\/hudo.com\/si\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/hudo.com\/si\/?s={search_term_string}\"},\"query-input\":\"required name=search_term_string\"}],\"inLanguage\":\"sl-SI\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/hudo.com\/si\/#organization\",\"name\":\"VSN Media\",\"url\":\"https:\/\/hudo.com\/si\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"sl-SI\",\"@id\":\"https:\/\/hudo.com\/si\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/hudo.com\/si\/wp-content\/uploads\/sites\/2\/2021\/03\/hudo-app-2.png\",\"contentUrl\":\"https:\/\/hudo.com\/si\/wp-content\/uploads\/sites\/2\/2021\/03\/hudo-app-2.png\",\"width\":2185,\"height\":2167,\"caption\":\"VSN Media\"},\"image\":{\"@id\":\"https:\/\/hudo.com\/si\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/hudo.si\",\"https:\/\/twitter.com\/hudo_si\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/hudo.com\/si\/#\/schema\/person\/2391667a63ea075ba94f2f2dc6b77537\",\"name\":\"A. G., STA\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"sl-SI\",\"@id\":\"https:\/\/hudo.com\/si\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/e13d22ac3e442658d5025fbbe6238a79?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/e13d22ac3e442658d5025fbbe6238a79?s=96&d=mm&r=g\",\"caption\":\"A. G., STA\"},\"url\":\"https:\/\/hudo.com\/si\/author\/alenka\/\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Za zdravilo, kakr\u0161no potrebuje Kris, v Nem\u010diji pla\u010dala zdravstvena blagajna - Hudo Slovenija","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/hudo.com\/si\/aktualno\/za-zdravilo-kakrsno-potrebuje-kris-v-nemciji-placala-zdravstvena-blagajna\/","og_locale":"sl_SI","og_type":"article","og_title":"Za zdravilo, kakr\u0161no potrebuje Kris, v Nem\u010diji pla\u010dala zdravstvena blagajna - Hudo Slovenija","og_description":"Zgodba o de\u010dku, ki trpi za spinalno mi\u0161i\u010dno atrofijo, kot slovenski de\u010dek Kris, je v zadnjem \u010dasu pretresla in zdru\u017eila tudi Nem\u010dijo. Tam je stro\u0161ke ve\u010d milijonov vrednega zdravljenja prevzela zdravstvena blagajna. De\u010dek Michael je tako ta teden prejel zdravilo zolgensma in je \u017ee v doma\u010di oskrbi, poro\u010dajo nem\u0161ki mediji.","og_url":"https:\/\/hudo.com\/si\/aktualno\/za-zdravilo-kakrsno-potrebuje-kris-v-nemciji-placala-zdravstvena-blagajna\/","og_site_name":"Hudo Slovenija","article_publisher":"https:\/\/www.facebook.com\/hudo.si","article_published_time":"2019-09-28T10:54:52+00:00","article_modified_time":"2019-09-28T10:55:25+00:00","og_image":[{"width":537,"height":546,"url":"https:\/\/hudo.com\/si\/wp-content\/uploads\/sites\/2\/2019\/09\/kris.jpg","type":"image\/jpeg"}],"author":"A. G., STA","twitter_card":"summary_large_image","twitter_creator":"@hudo_si","twitter_site":"@hudo_si","twitter_misc":{"Written by":"A. G., STA","Est. reading time":"2 minuti"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/hudo.com\/si\/aktualno\/za-zdravilo-kakrsno-potrebuje-kris-v-nemciji-placala-zdravstvena-blagajna\/#article","isPartOf":{"@id":"https:\/\/hudo.com\/si\/aktualno\/za-zdravilo-kakrsno-potrebuje-kris-v-nemciji-placala-zdravstvena-blagajna\/"},"author":{"name":"A. G., STA","@id":"https:\/\/hudo.com\/si\/#\/schema\/person\/2391667a63ea075ba94f2f2dc6b77537"},"headline":"Za zdravilo, kakr\u0161no potrebuje Kris, v Nem\u010diji pla\u010dala zdravstvena blagajna","datePublished":"2019-09-28T10:54:52+00:00","dateModified":"2019-09-28T10:55:25+00:00","mainEntityOfPage":{"@id":"https:\/\/hudo.com\/si\/aktualno\/za-zdravilo-kakrsno-potrebuje-kris-v-nemciji-placala-zdravstvena-blagajna\/"},"wordCount":403,"publisher":{"@id":"https:\/\/hudo.com\/si\/#organization"},"keywords":["Kris","nem\u010dija","otroci","Slovenija","zdravilo"],"articleSection":["Aktualno"],"inLanguage":"sl-SI"},{"@type":"WebPage","@id":"https:\/\/hudo.com\/si\/aktualno\/za-zdravilo-kakrsno-potrebuje-kris-v-nemciji-placala-zdravstvena-blagajna\/","url":"https:\/\/hudo.com\/si\/aktualno\/za-zdravilo-kakrsno-potrebuje-kris-v-nemciji-placala-zdravstvena-blagajna\/","name":"Za zdravilo, kakr\u0161no potrebuje Kris, v Nem\u010diji pla\u010dala zdravstvena blagajna - Hudo Slovenija","isPartOf":{"@id":"https:\/\/hudo.com\/si\/#website"},"datePublished":"2019-09-28T10:54:52+00:00","dateModified":"2019-09-28T10:55:25+00:00","breadcrumb":{"@id":"https:\/\/hudo.com\/si\/aktualno\/za-zdravilo-kakrsno-potrebuje-kris-v-nemciji-placala-zdravstvena-blagajna\/#breadcrumb"},"inLanguage":"sl-SI","potentialAction":[{"@type":"ReadAction","target":["https:\/\/hudo.com\/si\/aktualno\/za-zdravilo-kakrsno-potrebuje-kris-v-nemciji-placala-zdravstvena-blagajna\/"]}]},{"@type":"BreadcrumbList","@id":"https:\/\/hudo.com\/si\/aktualno\/za-zdravilo-kakrsno-potrebuje-kris-v-nemciji-placala-zdravstvena-blagajna\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/hudo.com\/si\/"},{"@type":"ListItem","position":2,"name":"Za zdravilo, kakr\u0161no potrebuje Kris, v Nem\u010diji pla\u010dala zdravstvena blagajna"}]},{"@type":"WebSite","@id":"https:\/\/hudo.com\/si\/#website","url":"https:\/\/hudo.com\/si\/","name":"Hudo Slovenija","description":"Vse novice iz Slovenije in sveta","publisher":{"@id":"https:\/\/hudo.com\/si\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/hudo.com\/si\/?s={search_term_string}"},"query-input":"required name=search_term_string"}],"inLanguage":"sl-SI"},{"@type":"Organization","@id":"https:\/\/hudo.com\/si\/#organization","name":"VSN Media","url":"https:\/\/hudo.com\/si\/","logo":{"@type":"ImageObject","inLanguage":"sl-SI","@id":"https:\/\/hudo.com\/si\/#\/schema\/logo\/image\/","url":"https:\/\/hudo.com\/si\/wp-content\/uploads\/sites\/2\/2021\/03\/hudo-app-2.png","contentUrl":"https:\/\/hudo.com\/si\/wp-content\/uploads\/sites\/2\/2021\/03\/hudo-app-2.png","width":2185,"height":2167,"caption":"VSN Media"},"image":{"@id":"https:\/\/hudo.com\/si\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/hudo.si","https:\/\/twitter.com\/hudo_si"]},{"@type":"Person","@id":"https:\/\/hudo.com\/si\/#\/schema\/person\/2391667a63ea075ba94f2f2dc6b77537","name":"A. G., STA","image":{"@type":"ImageObject","inLanguage":"sl-SI","@id":"https:\/\/hudo.com\/si\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/e13d22ac3e442658d5025fbbe6238a79?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/e13d22ac3e442658d5025fbbe6238a79?s=96&d=mm&r=g","caption":"A. G., STA"},"url":"https:\/\/hudo.com\/si\/author\/alenka\/"}]}},"amp_enabled":true,"_links":{"self":[{"href":"https:\/\/hudo.com\/si\/wp-json\/wp\/v2\/posts\/407298"}],"collection":[{"href":"https:\/\/hudo.com\/si\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/hudo.com\/si\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/hudo.com\/si\/wp-json\/wp\/v2\/users\/5"}],"replies":[{"embeddable":true,"href":"https:\/\/hudo.com\/si\/wp-json\/wp\/v2\/comments?post=407298"}],"version-history":[{"count":1,"href":"https:\/\/hudo.com\/si\/wp-json\/wp\/v2\/posts\/407298\/revisions"}],"predecessor-version":[{"id":407299,"href":"https:\/\/hudo.com\/si\/wp-json\/wp\/v2\/posts\/407298\/revisions\/407299"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/hudo.com\/si\/wp-json\/wp\/v2\/media\/407285"}],"wp:attachment":[{"href":"https:\/\/hudo.com\/si\/wp-json\/wp\/v2\/media?parent=407298"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/hudo.com\/si\/wp-json\/wp\/v2\/categories?post=407298"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/hudo.com\/si\/wp-json\/wp\/v2\/tags?post=407298"},{"taxonomy":"source","embeddable":true,"href":"https:\/\/hudo.com\/si\/wp-json\/wp\/v2\/source?post=407298"},{"taxonomy":"supertag","embeddable":true,"href":"https:\/\/hudo.com\/si\/wp-json\/wp\/v2\/supertag?post=407298"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}